Toulouse 0 Posted February 17, 2010 sooo... there's news, good news mostly, but still feel a bit blah, not sure how it comes...here goes!first of all: I'm an odd case, since I have regenerative (recovering in case this is weird) bones. Let me explain it better: in the beginning of my RA I had erosion in my feet, in the joints of my toes, which means cartilage loss (if I'm not mistaken)... But now, years after, she took a look at every x-ray we took along, it seems like the erosion recovered itself, so there's nearly erosion left and the bone looks fine.Second: the liver values... they were good, she had nothing to say about that, so I asked her how it came my values were so high a while ago. She didn't know, it could be because I went out pretty bed (and drank a lot, but that's never the case) or because of eating too much chocolate or ... so, we don't know and it's nothing to worry aboutthen my hands... they're not bad, but we have to keep an eye on them, because there's something with the cartilage and there's a REALLY mild form of disfiguration, but nothing severe. So that makes me feel a bit bad I think, scared to think of it my hands might look one day like the severe cases you find on the internet (but I think - okay, the rational side though, because I'm more emotional hahaha - that it won't be the case because my illness is being treated in a way to avoid disfiguration or bad functioning). Also, "reading between the lines", we were looking to decrease the dosage of meds I have to take, but she strongly said we are not going to do that, because of the tiny changes, because I have a form that is sort off aggressive, in a way that if I would stop taking my meds, I would have severe malformations and pain.The END : DOh. And she suggested it would be better for me to exercise more. Still trying to figure out if she means I'm a bit too overweight or that movement is good : D Share this post Link to post Share on other sites
Toulouse 0 Posted February 17, 2010 inu-kijo wrote:I wonder when miss BG is gonna start playin again?whenever miss BG finds more time she will surely participate again!! :pZoonie wrote:I am hereI am hungryI am thirsty I still have 2 catsI have one angry daughterand I have been gardening (got weeping blisters to prove it)and ironing - still not finished thoughand now about you?I first thought it was a song It reminded me of this (take a LONG stare, because it's an animated gif)What's with the angry daughter?Frannie wrote:i will brb.. want to read what BG has to say.... and listen to why Gill's daughter is angry (and I hope it's not at her)I really tried to explain it to you guys, I'm having troubles to explain it in Dutch already lol Share this post Link to post Share on other sites
inu-kijo 0 Posted February 17, 2010 HAHAHAHA I am sure she meant movement is good.Well hunny that sounds like a lot of good news to me!!!(a few things I am taking notes on to ask about DR. cause I have been having trouble with my toes a lot and I dont want disfigured feet!)its crazy how much a like we are.... both in the good and apparently bad ways!: * Share this post Link to post Share on other sites
Wish Fairy 0 Posted February 17, 2010 OK....so G&T's for Kijo and Gill, Bloody Mary for Fran (bit early or not ?) ...and a spot of Yoga for BG ???I;m gonna have wine I think Share this post Link to post Share on other sites
Frannie 0 Posted February 17, 2010 well on the whole, seems like good news BG.. am sure the exercise is to keep you limber and build muscle mass. Great that you are regenerating bone. Wishing you all the best... I'd be in trouble now if I grew bone over my knee implants Share this post Link to post Share on other sites
Toulouse 0 Posted February 17, 2010 inu-kijo wrote:HAHAHAHA I am sure she meant movement is good.Well hunny that sounds like a lot of good news to me!!!(a few things I am taking notes on to ask about DR. cause I have been having trouble with my toes a lot and I dont want disfigured feet!)its crazy how much a like we are.... both in the good and apparently bad ways!: *I was a bit scared to put the story here, because I don't want you to be afraid or something. It's nothing but good news, since nothing really changed and that's the entire point of the treatment. Have you gotten x-rays? (it's pretty cool to see your own bones on a black & white pic hahaha! It creeps me up, but still is hilarious to look at!)yeah I suppose movement is good, but she said it in a way which makes you think MWAH! : *Wish Fairy wrote:OK....so G&T's for Kijo and Gill, Bloody Mary for Fran (bit early or not ?) ...and a spot of Yoga for BG ???I;m gonna have wine I think Yoga? Pleaaaase give me some alcohol Share this post Link to post Share on other sites
Zoonie 0 Posted February 17, 2010 Oooh before I forget, look at the new banner up above *whistles*inu-kijo wrote:oooh Gill, you sound a bit like me with the cable company earlier..... you need a hug sweetie??Please, not only are hugs good, but I really like them, TYFrannie wrote:this does not sound good... would a G & T help? or just a hug?I'm fine, but never turn down a hug (see above lol) and it's a V&T with rocks of ice and a slice of lime, provided by IMOM - who says 'good evening ladies'Toulouse wrote:I first thought it was a song It reminded me of this (take a LONG stare, because it's an animated gif)What's with the angry daughter?LOL that's funny ♪I like the gif BGinu-kijo wrote:HAHAHAHA I am sure she meant movement is good.Well hunny that sounds like a lot of good news to me!!!I think it sounds very positive, so I would take heart.Have you ever thought about pilates BG?Will type about daughter, she was on the phone, but she's gone now, IMOM is cooking and I am going ommmmm on Wish's advice! 8) Share this post Link to post Share on other sites
Toulouse 0 Posted February 17, 2010 Frannie wrote:well on the whole, seems like good news BG.. am sure the exercise is to keep you limber and build muscle mass. Great that you are regenerating bone. Wishing you all the best... I'd be in trouble now if I grew bone over my knee implantsI think you're right too, we were discussing the ski trip for a bit and I just said: well, nothing but good, only a bad physical condition, so I'm guessing she was talking about that tooand to stay flexible ofcourse! I have... what's it called? superflexible joints, my arm bends farther then it's supposed to bend Share this post Link to post Share on other sites
inu-kijo 0 Posted February 17, 2010 at first BG i thought you drew those pics, reminds me of the stuff you do. : D Share this post Link to post Share on other sites
Wish Fairy 0 Posted February 17, 2010 *********handing over the wine to BG******** (Yoga - very good for you,.and gentle )Gill....are you still here ? What's the story with ED ? I was thinking it was a great gardening day today, but was too busy with other stuff Share this post Link to post Share on other sites
inu-kijo 0 Posted February 17, 2010 Double jointed BG?? Share this post Link to post Share on other sites
inu-kijo 0 Posted February 17, 2010 ugh. double posting computer. Share this post Link to post Share on other sites
Zoonie 0 Posted February 17, 2010 OKbrief asidedaughter is angry, this is ED btw, as she keeps encontering such incredibly rude people, and that includes her boss and colleagues.I'm trying to school her in the art of keeping her cool and perfecting an air of impervious professionalism - she's still at an age when it doesn't come easy.I think I have an irritating habit of giving advice which is far easier to feel when you're not standing in those shoes >moving on Share this post Link to post Share on other sites
Toulouse 0 Posted February 17, 2010 Zoonie wrote:I think it sounds very positive, so I would take heart.Have you ever thought about pilates BG?Pilates... Now THAT's a good idea!!Oh and I needed to ask you something too, because of your advice with the Arnica... Might be an odd question, but here goes: Is there any supplement you know off that improves the creation (or something) of cartilage? Like... Drinking milk helps you strengthen your bones (because of the calcium) Share this post Link to post Share on other sites
Frannie 0 Posted February 17, 2010 looks up... new banner where? Share this post Link to post Share on other sites
inu-kijo 0 Posted February 17, 2010 Oooh I forgot to answer.... BG i have had a couple of X-rays done before... even a CT scan on my face.... but not anything for whats wrong with me recently. Share this post Link to post Share on other sites
Toulouse 0 Posted February 17, 2010 inu-kijo wrote: at first BG i thought you drew those pics, reminds me of the stuff you do. : DHEY!!! Don't laugh with me :pWish Fairy wrote:*********handing over the wine to BG******** (Yoga - very good for you,.and gentle )Thanks!!! inu-kijo wrote:Double jointed BG??Had to google it and it says hypermobility, so I am guessing it's that!But only in a normal way, I can't do tricks :pZoonie wrote:OKbrief asidedaughter is angry, this is ED btw, as she keeps encontering such incredibly rude people, and that includes her boss and colleagues.I'm trying to school her in the art of keeping her cool and perfecting an air of impervious professionalism - she's still at an age when it doesn't come easy.I think I have an irritating habit of giving advice which is far easier to feel when you're not standing in those shoes >moving onI think one day she will realize you have tried to teach her that Share this post Link to post Share on other sites
inu-kijo 0 Posted February 17, 2010 Frannie I kept looking for a new banner too, but she means that Zoonie is on the main banner at the TOP top. : Djust figured it out. Share this post Link to post Share on other sites
Zoonie 0 Posted February 17, 2010 inu-kijo wrote:ugh. double posting computer.that was kind of ironic as you were posting about being double jointed *SHOUTS* banner people, banner!Toulouse wrote:Zoonie wrote:I think it sounds very positive, so I would take heart.Have you ever thought about pilates BG?Pilates... Now THAT's a good idea!!Oh and I needed to ask you something too, because of your advice with the Arnica... Might be an odd question, but here goes: Is there any supplement you know off that improves the creation (or something) of cartilage? Like... Drinking milk helps you strengthen your bones (because of the calcium)I haven't tried it, but I always think pilates sounds a great idea, for everyone really - in your case especially.I'm not sure about growing cartiledge, but they always say to take fish oil supplements for good joint care, for the lubrication and movement aspects, so I guess that might be a good idea too? Share this post Link to post Share on other sites
Wish Fairy 0 Posted February 17, 2010 Oh BG Pilates - AWESOME. I have been taking classes for a year and they are really tough but very gentle (it really changes your body shape too) I heartily recommend it !Sorry for delay in replying my laptop is behaving oddly (and am watching womens dowhill ) Share this post Link to post Share on other sites
inu-kijo 0 Posted February 17, 2010 I commented on the banner earlier GIll.: DThought you were here, but you had disappeared. Share this post Link to post Share on other sites
Frannie 0 Posted February 17, 2010 OK Kijo.. I changed 16 entirely... hope you don;t get the red x any longer Share this post Link to post Share on other sites
Zoonie 0 Posted February 17, 2010 inu-kijo wrote:Frannie I kept looking for a new banner too, but she means that Zoonie is on the main banner at the TOP top. : Djust figured it out.inu-kijo wrote:I commented on the banner earlier GIll.: DThought you were here, but you had disappeared.Oops yes, grabbing stardom Zoonie is up there playing the trumpet (having ignored the instruction not to wear white, oops!)Sorry it's been a bit of an odd day, and my shoulders are achy today for the first time in a while. I took advantage of a much better day, it wasn't too cold and it was sunny, so quite nice for the time of year.I went out gardening, and Socks 'Kaytoed ' me for my trouble, attack-cat!Wish Fairy wrote:Oh BG Pilates - AWESOME. I have been taking classes for a year and they are really tough but very gentle (it really changes your body shape too) I heartily recommend it !Sorry for delay in replying my laptop is behaving oddly (and am watching womens dowhill )No worries Wish, we know you're here, did you not get my email containing some questions?I really want to go to pilates, I must make more effort to do the stuff I think about. Share this post Link to post Share on other sites
Toulouse 0 Posted February 17, 2010 Zoonie wrote:*SHOUTS* banner people, banner!I haven't tried it, but I always think pilates sounds a great idea, for everyone really - in your case especially.I'm not sure about growing cartiledge, but they always say to take fish oil supplements for good joint care, for the lubrication and movement aspects, so I guess that might be a good idea too?Here banner banner banner!!!Zoonie rocks!!I actually have a yoga "game" for wii, but I am doubting it will be as good as when you go to a class... So it's between yoga and pilates (and YES they have it hear, only have to find out if our uni has it too, that's a lot cheaper)I heard that too, about the fish oil supplements, so I take it for real now... maybe a good idea to take some (or just eat more fish... that might be 'healthier' because I've always had troubles believing things like extra supplements would work : blush : )Wish Fairy wrote:Oh BG Pilates - AWESOME. I have been taking classes for a year and they are really tough but very gentle (it really changes your body shape too) I heartily recommend it !Sorry for delay in replying my laptop is behaving oddly (and am watching womens dowhill )You're making me curious now!!! Share this post Link to post Share on other sites
Frannie 0 Posted February 17, 2010 oooo From Lisa.. our Roboslobin.. Cricket:Lisa Martin Burk Good News!! William's swallow study went well today! He is good with pudding and honey thickness. So, as soon as we get the word from the doctor, the Mister is going to be able to take some food by mouth again (since July)! I'm already planning menus! Share this post Link to post Share on other sites
inu-kijo 0 Posted February 17, 2010 Frannie you are set to go my dear.ooooh soon it will be sleepy time for keeeey-Joeeeeee! Share this post Link to post Share on other sites
Zoonie 0 Posted February 17, 2010 Great news from Lisa, what a trial this has all been for them.Of all the supplements BG, I think you can perhaps rely on fish oils, but yes, I eat a lot of salmon, and mackerel, I love smoked mackerel.Speaking of which have to go and eat, we have smoked haddock tonight,Byeee for now Share this post Link to post Share on other sites
Frannie 0 Posted February 17, 2010 yay for Kijo.. pretty soon sleepy time for me too! Lord, I lov my naps! Share this post Link to post Share on other sites
Frannie 0 Posted February 17, 2010 inu-kijo wrote:Frannie you are set to go my dear.woo hooo thank you! Share this post Link to post Share on other sites
inu-kijo 0 Posted February 17, 2010 boss is here... making one self scarce..... Share this post Link to post Share on other sites
Toulouse 0 Posted February 17, 2010 Mmmm, smoked salmon!! That's about the only fish I eat And fish sticks, but not sure you guys know what that isA bit annoyed atm by my sister, but I'm letting her vent... Share this post Link to post Share on other sites
Frannie 0 Posted February 17, 2010 awwwwwww my big ol hairy dog is asleep at my feet.. chasing a bunny or squirrel or maybe she's just herding... but her legs are moving like a puppy's Share this post Link to post Share on other sites
Frannie 0 Posted February 17, 2010 Toulouse wrote:Mmmm, smoked salmon!! That's about the only fish I eat And fish sticks, but not sure you guys know what that isA bit annoyed atm by my sister, but I'm letting her vent...ahh fish sticks... the mystery fish.. but I love them! Share this post Link to post Share on other sites
Toulouse 0 Posted February 17, 2010 Oh Frannie, push the dog over here! I'm still cold, having trouble warming up today and I could use a big hairy dog as a blankie : DFish sticks are sooo gooood!makes me want to eat them right now hahaha! Share this post Link to post Share on other sites
Wish Fairy 0 Posted February 17, 2010 Fish Sticks (gag me with a spoon !!) Aww Frannie- I have one dog asleep and dreaming of squirrels too, the other one is out chasing foxes and creating havoc in the garden Share this post Link to post Share on other sites
Frannie 0 Posted February 17, 2010 well she snores and has bad breath... still want her? she is BIG and Hairy though Share this post Link to post Share on other sites
Frannie 0 Posted February 17, 2010 Wish Fairy wrote:Fish Sticks (gag me with a spoon !!) Aww Frannie- I have one dog asleep and dreaming of squirrels too, the other one is out chasing foxes and creating havoc in the garden maybe they can team up and catch that darned squirrell Share this post Link to post Share on other sites
Frannie 0 Posted February 17, 2010 well girls.. hubby is pulling into the drive, think I'll go greet him like the wonderful wife I am.. and then talk him into napping with me. see you later Share this post Link to post Share on other sites
Wish Fairy 0 Posted February 17, 2010 Bye Frannie....I'm off too - sorry to leave you BG but must eat something before OH gets home from FranceBye Share this post Link to post Share on other sites
Toulouse 0 Posted February 17, 2010 Oh no : /I get downstairs for like a couple of mins and it's deserted here!oh wellwill start singing a song, but which one Share this post Link to post Share on other sites
Toulouse 0 Posted February 17, 2010 It's actually quite depressing this song...I'm singing a song to myselfCause I don't belong any longerJust making it up in my headThis feeling is strong and getting strongerYou see the light?Tell me you see the lightJust making it up in my headCause I need someone to sing along withSing along withIt's called Song to self by Travis - a band I love actually (although they are sometimes depressing hahaha) Share this post Link to post Share on other sites
Toulouse 0 Posted February 17, 2010 Might look for not so depressing songs lol, don't want to scare everyone away!!!Am emailing in the meantime, to get more information about an initiative for swimming for RA patients and now for pilates, if it is possible to start lessons now... So that means I can go swimming on Wednesday, Pilates on Thursday and maybe Zumba on Tuesday - if that's not too hard for me (she warned me though)Kitty's looking at the screen, wondering what I am doing! Share this post Link to post Share on other sites
DawnyDawn 0 Posted February 17, 2010 Hey BG just read back a bit, you here alone hun?Haven't read too far so how did your appointment go? Share this post Link to post Share on other sites
Toulouse 0 Posted February 17, 2010 Lol, they all left me Appointment went well, thank youI think it was nothing but good news, only have to keep an eye on my hands because there's a slight change in them, but nothing severe Share this post Link to post Share on other sites
DawnyDawn 0 Posted February 17, 2010 Sorry hun, got distracted with PS (still hunting for the last item which I think I just found)That's good news, I'm glad you're happy witht he outcome. So your liver count is ok now? Did they tell you why it was high? Share this post Link to post Share on other sites
Toulouse 0 Posted February 17, 2010 Good luck with the hunt I've been out for a couple of weeks and I'm still figuring out my schedule for school, so not sure when I'll be able to participate againThe liver count is okay, there's no explainable reason why it was so high (she suggested too much alcohol, but I rarely drink and never too much, or maybe because of too much chocolate hahaha)How are you hun? Share this post Link to post Share on other sites
DawnyDawn 0 Posted February 17, 2010 Thanks hun, I just posted my last piccy so very pleased with myself, and Frannie of course my collaborating partner. We're early with our answers this week cos Kijo made it a little easier , but I think we're in for it next week We miss you over there but I know how hard it is when you have heavy schedules...I only really have time to do visits and hunting and sometimes don't believe what I put off in order to fit hunting in :JC_lol: : Share this post Link to post Share on other sites
Toulouse 0 Posted February 17, 2010 I think she's going to be very evil next week!Once I found my way in the schedule and have adjusted a little, I might find some time for the hunt. For now I even have to ask Mom to play with Snorks some days (she loves to do that hahaha, so I don't mind), because sometimes I even don't have the time for it. Share this post Link to post Share on other sites
DawnyDawn 0 Posted February 17, 2010 Yes it's very time consuming and even all consuming at times!! But I love it, it's so much fun.At least your Mum is happy to play with Snorks, if I don't get on here poor Sparkle is left alone Hunny, I hate to leave but it's half time for footy and hubby just made me a huge bowl of fruit salad and yoghurt and so I have to run.Have a great evening *waves*xx Share this post Link to post Share on other sites
Toulouse 0 Posted February 17, 2010 See you later sweetie!!!I'm still here, until I go to bed, just stopped working and turning myself in front of the TV in the meantime, watching 'you are what you eat'... Share this post Link to post Share on other sites